Symptom Timeline & Key Events
Childhood
- ADHD
- Fatigue
- Eczema
- Body dysmorphia
- Trauma
Late teens and early 20’s
- Age 15-20: Epididymis swelling:
- Age 16-17: OCD symptoms developing
- Age 17: Cystic acne, minimum of 6 months of daily doxycycline
Body dysmorphia
Fundiform penile ligament injury and subsequent mental and medical trauma (only diagnosed by an international urologist in 2023)
Diagnosed low testosterone
- Age 17/18: Checked myself into the hospital for extreme stress/emotional disturbance,
vitals suggested drug use (no drugs involved)
- Age 18: Onset of severe skin rash and chemical sensitivity
- Age 18/19: Restless leg syndrome
- Age 20: Fractured T12 vertebrae during squat, subsequent mental trauma
- Age 21: Attempted natural healing to resolve skin issues (diets, fruit fasts, herbal tinctures)
- Age 22: Trauma / dissociation, complex situation with mother passing away and being
responsible for a younger sibling
- Age 23: Major dental surgery following a year-long infected tooth after failed extraction
- Age 23-24: Extremely poor and limited diet due to dental trauma, night sweats started,
swollen lymph node in neck and then swollen lymph nodes through body developing soon after and onset of memory problems
Mid-late 20’s
- Age 26: Trauma / dissociation due to aunt passing away who I lived with
Moved in unplanned with new partner as I was kicked out of my (aunt’s) home, the house that I moved into has suspected mold issues
Worsening skin problems
- Age 26/27: 30-day water fast, detox saunas, ice baths
- Age 27: Holistic health doctor diagnosed a golden staph infection via a GP Map,
prescribed 50mg of prednisolone and 5+ rounds of antibiotics without improvement until a pharmacist advised changing doctor
Still reacting to foods and chemicals on prednisolone
Started diazepam and panadeine forte
Severe, unmanageable mental health issues when tapering the prednisolone, only when tapering to lower amounts with no ability to go lower than 7.5mg
- Age 27/28: As prednisolone dropped to ~37-30mg, other medications, particularly the
ADHD medication, stopped being as effective
- Age 28: Additional trauma
Genetic testing revealed predispositions to slower and hindered dopamine pathways, vitamin d absorption issues and homocysteine issues, amongst other issues as well.
GI map showed leaky gut and SIBO. Commenced Low FODMAP diet and having betaine and digestive enzymes with everything i consumed other than water
- Age 28/29: Completed two rounds of an extensive gut protocol with no improvement
- Age 29: Pelvic organ prolapse, suspected rectal tear and umbilical hernia
Osteopenia
- Age 30/31: Air hunger
- Age 31: Travelled to India for desperate holistic medical help, but nothing beneficial
eventuated.
Additional trauma.
- Age 31: Iron deficiency, iron infusion completed.
- Age 32: Complete loss of appetite
Other Symptoms
Mental and Neurological
- Chronic stress: (pre steroids but worsened since)
- Severe and debilitating anhedonia – general, musical and sexual (anorgasmia); total absence of pleasure, motivation and reward and lack of memory or ability to remember what life feels like (pre steroids but worsened since)
- Dopamine based issues, I suspect a deficiency and/or immune/inflammatory “block” although no testing has been done. I have genetic mutations with the D2R2 receptor as well (pre steroids but worsened since)
- Dopamine medications significantly less effective (post steroids)
- Agitation and fear (pre and post steroids)
- Impulsiveness and compulsive behaviour (pre steroids to a less extent but has been extreme since)
- Anxiety: Social inability (pre steroids but worsened since plus additional trauma)
- Persistent panic disorder (pre steroids but worsened since)
- Loss of inhibition (post steroids)
- Psychosis-like symptoms without hallucinations and delirium (post steroids)
- Memory impairment (worsened since diazepam and prednisolone)
- Problems understanding (Post steroids)
- Lifelong fatigue (except for a short time at the beginning of steroid treatment), I have this uncontrolled fatigue even with stimulant medication, I can barely get out of bed now, I can’t look after myself or leave the house. (pre steroids but worsened since steroids)
- Insomnia with poor quality sleep confirmed by sleep study. (pre steroids but worsened since)
- Restless leg syndrome / Involuntary movements in my hands and legs ( RLS pre steroids but worsened since)
Physical
- Air hunger (post steroids)
- Continuing oral complications post major dental work (pre steroids)
- History of extreme overeating: This has happened since I was a child. (pre steroids and within the last few years as well)
- Complete loss of appetite more recently, I feel unable and sick while eating and my weight fluctuates significantly
- Constipation unless having an all smoothie or vegetable diet (pre steroids and current)
- Weakness and numbness (post steroids)
- Depending on the prednisolone dose I have intense sweating mostly during the night (pre steroids but current)
- Dark/purple/ small patches/bruises on my genitals (without pain) that don’t cause any pain, they show up in one or multiple and similar happened a couple of times on my shin when i had lots of pain in that area
I also get large dark blood blisters on the side of my tongue and molar areas would be (post steroids)
- Proliferative leukoplakia and bleeding tongue when brushed (post steroids)
- Urine hesitancy, weak flow, difficulty clearing bladder, need for frequent and urgent urination volume often little enough to go unnoticed, this has been on and off for years but it’s gotten much worse recently (pre steroids but worsened since)
- General extreme swelling, swollen floor of my mouth with harden nodes and salivary glands and numbness inside of lips, and my lower abdomen is notably swollen. (pre steroids but worsened since)
- High streptococcus identified in GI maps 2022, 2023 and 2024, and other imbalances including H Pylori and candida
- Cannot exercise due to extreme fatigue, it feels like my muscles can’t product enough force and energy to exercise e.g. in the morning my partner needs to hand me my medication because my hands and arms are too weak, in addition weakness causing injuries (post steroids)
- Many injuries resulting from exercise (pre and post steroids):
Shoulder injury from chin-ups
Upper forearm/elbow injury
T12 fracture
Many torn pecs
Multiple torn/strained hamstring injuries even while doing rehab
Both knees have came out several times, one of them broke
Quad strain
Lower back strain
Bicep strain
Broken ankle
Broken knuckle/finger
Separated abdomen wall 1.8cm (suspected at same time of prolapse
A physiotherapist said that I have the flexibility of 1 in 10,000 professional athletes and I’ve wondered if this could be a form of Ehlers Danlos Syndrome, multiple dentists have mentioned this to me as well.
Scheuermann's disease (pre steroids)